After Diagnosis

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Every person with MS is unique, so each person will react to his or her diagnosis in a different way. For many, it’s a time filled with questions. While not all of them will have answers, your neurologist and MS nurse are excellent sources of reliable information who can help explain the disease, the available treatment options, and what other support is available to help you manage your symptoms and feel your best.

It’s also a time for you to provide information. To make sure your MS team can put together the most appropriate treatment programme for you as a person, they need to know all about you—your hopes, your fears, what matters to you and what doesn’t. The following list has some examples of the kind of information you may like to share with those looking after you:

  • Your day-to-day life. Help your health care professional get a better picture of your day-to-day life—do you have children or other family members to care for? What activities or hobbies are important to you? Do you travel often? Are you a student? Do you like routines or is each day different?
  • Your work life. The hours you work, a need to travel, or the physical requirements of your job can all make a difference to which treatment will suit you best
  • Any plans to start a family. Even if you don’t plan on starting a family right away, let your doctor know if this is something you would consider in the next couple of years—it may have an impact on the type of treatment your doctor recommends for you
  • Family history or previous health issues. It’s important to give your doctor a good overview of any previous or pre-existing conditions and a general background of your family history
  • Future plans. MS is a long-term disease and, with several treatment options available and more in development, your doctor can help build a treatment programme for you. This is a good time to highlight any future plans, such as family, career, sport, travel, or big events, so your doctor can create a plan that is tailored to your needs